Category: Reflections
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March 25, 2023
Late night edition Tonight brought to you from The Bradenton Hospice House. Like a nice hotel but better. I’m checked in for a day or two so we can work with the medical team in real time to discover a workable drug routine to control my pain. Hans and have really tried but when nausea…
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You are invited to our wedding 😍
Wahoo!!! Our wedding videos are here….3 different versions. As you might imagine, Hans and I did not want a traditional wedding. Getting married in our 60’s seemed reason enough to stray from the script. Factor in my stage 4 cancer and we knew that everything about our legal union would be unconventional. That’s kind of…
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March 24, 2023
What do I know about cancer trials? …not much. Any knowledge I have was picked up watching countless episodes of medical dramas on TV back in the day so, yeah, not a lot of valuable info in this noggin. I do know that people decide to participate in clinical trials for many reasons. For some,…
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March 23, 2023
I didn’t even know it was connected. Yet when Felicia, the nurse practitioner, stepped to the left, there it was, silently pumping away. Slowly and steadily, a one and a half liter bag, filling up with Gutz (aka Ascites), who btw didn’t seem quite so ominous now, squishing around in the reddish ooze. Blood work…
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March 22, 2023
Despite much experimentation, we have not found the perfect combinations of drugs at the right intervals to keep me pain free. We re-tried the hydrocodone 2x yesterday. The pills helped push down the pain at the cost of knocking me out. I basically slept all day and night. Today is RSO and then off to…
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March 21,2023
Tap tap. I have an appointment for tomorrow at 1pm with Dr Berry. I had to call and leave a message to get the appointment Tap tap. Because here’s the thing I figured out yesterday. If I don’t see Dr. Berry until Friday to review the scans and then we need to schedule a tap,…
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March 20, 2023
I awoke passing gas. Not a subject to share under normal circumstances but as you well know, these are not normal circumstances. Under these circumstances, it is accepted, practically expected to discuss the basic need to and the healing effects of farting. Farting has long been appreciated for its contributions to the arts, always bringing…
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March 19, 2023
Finally, hours after we began, we have found peace. Me and my creatures are as one…under a temporary armistice. Pain is not felt. I’m still pretty much stuck in bed. I use the word “stuck” with some hesitation because my bed is lovely comfy. If I didn’t worry about losing all my muscle tone, I’d…
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March 18, 2023
The deck sliders are wide open and a steady, delicious breeze blows into the room. This is the season and the weather we wait for …Floridians willing to suffer through the hellish temperatures of summer. This is the payoff. It is a lovely quiet beginning to our Saturday. I’m on the couch, waiting for the…
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March 17,2023
Happy St Patrick’s day. I don’t have a drop of Irish blood but I can get behind any reason to celebrate! I’m also having a mini party to celebrate that this morning’s poop didn’t make me scream. And it wasn’t green. Hans just woke up and saw me typing away on my phone. Write about…